Monday, October 1, 2007

Surgery and Decisions

Hi everyone,

Deb continues to medicate for a rash that is improving, but is still present on her ankles, hands and face. She is taking extra B 6 tablets to help with numbness and pain in her toes and the tips of her fingers. She is taking steroids to help with the rash and her hair is coming in gray. Yikes!!

Deb's surgeon examined her on Wednesday and after speaking with her oncologist, Dr. Weyburn, called Deb at work to tell her about the next steps.

A MRI will be done and then Deb and I will meet with Dr. Compagnoni, her surgeon, to discuss surgery. The current medical opinion is that a mastectomy will be necessary rather than a lumpectomy.

Deb will have to decide if she wants reconstructive surgery first. If so, then she would meet with the doctor recommended by Dr. Compagnoni who would preform the reconstruction at the same time at the breast surgery. Deb would have to decide between two implants, silicone and saline or using the tissue from her abdomen. The main difference is the recovery time, six week or more versus two to three weeks for the implants.

After surgery Deb would take an oral medication and have radiation treatments. The number of treatments could reach thirty or more.

Deb is doing well with this, but we plan to meet with Pastor Tews to get some help dealing with our emotions. We realize there are no guarantees, either for the surgery or after, and this is still a frightening time for us.

We had a good weekend with terrific weather and topped off by dinner at Deb's parents with pot roast and noodles. We even took Strider to visit. She was beside herself with happiness going on a car ride that didn't involve the groomer or the vet.

Please renew your prayers for Danny and Marge, and all those like Deb that face cancer.

On a wonderful, positive note, a miracle has allowed Molly Brown (don't you just love the name) to have the medication line removed from her chest and to stop wearing a back pack filled with the medication twenty four hours a day.

When Molly was diagnosed with what the doctors called an incurable lung disease shortly after birth, six years ago, she was sentenced to a life without most of the enjoyments typical babies and toddlers enjoy. She couldn't swim, and all of her clothes had to accommodate the line and the backpack. Can you imagine what her first day was like without the gear? He mother wrote a note about what it was like. If you are interested, please write to me and I'll send it to you. I tried to read it to Deb and had to stop several times to regroup. Molly's mom's sister is married to Deb's brother. This is a real miracle. Praise God! Unsinkable Molly Brown indeed!

My e mail address is pontiacdan45@gmail.com for this blog.

Take care everyone, hug one another and pray for each other.

Dan

Tuesday, September 25, 2007

Ruminations

Hello Everyone,

It's hard to believe it's been a couple of weeks since I've brought this up to date. I'm sitting here watching Reaper, about a boy whose soul was sold to the devil by his parents. Seems realistic. Dancing with the Stars tonight was way better.

Deb is doing fairly well. Unless you count the rash on her legs and face, the loss of her sense of taste, and the feeling that this has gone on too long already. On the positive side, we are approaching surgery and then rehab, so we're pleased that we are making inroads into the timetable. We know God is in control.

No much going on in our lives right now. Deb usually has a good day on Friday, with a lot of energy, but needs frequent naps on the weekends. Monday, Tuesday and Wednesday are good, and even her taste buds come back by Tuesday, but gone again on Thursday. Deb sees the surgeon on Wednesday and the oncologist on Thursday, so we should know more then.

We have committed to attending Deb's 30 year class reunion and the 50Th Wedding Anniversary party for her Aunt and Uncle in October.

We had some sad news, that Danny has new cancer and will need more treatment. Apparently it is chronic so he will always have to be aware of changes that signal new outbreaks of cancer. Please remember him and Marge in your prayers.

I talked to my mom tonight. After the last few e mails and conversations with my sister, I'm amazed we can still talk. My mom's body is a wreck, but she continues to baffle all the health care providers by staying alive. It is no exaggeration to say that she should have died many times over the last two years and that she has set some kind of record for being in hospice so long. Her organs fail, she has ulcerated sores, her blood pressure sinks and she is on enough morphine to knock out an elephant every day and yet through some miracle she lives on.

I talked to her, and I said "I love you Mom" and she replied, "I love you son". It's is so hard to think that she will die and I won't hear that again. A parent's love. Nothing here to suggest we had a perfect relationship, or that I was a wonderful son, but I've had her for 62 plus years. The only mother I'll ever have, and for all her faults, and for all of mine, she loved me with the forgiving love only a mother can have.

A man never sees all that his mother has been to him until it's too late to let her know he sees it.
Author:
William Dean Howells 1837-1920, American Novelist, Critic

I have tried to accept and understand all that is going on in my life. My hearing is at a point where I need help, so I'll have that tested. My vision is OK, according to the doctor, but I have cataracts forming in both eyes. I had good test results today with my PSA and blood sugar, so I should be counting my blessings, but I can't escape the constant reminders of Deb's life and death battle and my mom slipping ever closer to the abyss. I know this too shall pass, but some days I just want to kick the can. How did I get this Yugo body instead of the Cadillac I ordered?

Deb is going hat less now, and she feels good about it. She continues to get great support from friends and family, and of course from our little church. We pray constantly for strength and patience.

Thanks to everyone who reads this and prays for us. Please remember to hug each other and let people know you love them. The ones, like me, who need extra grace are more difficult to love but need it the most.

Peace,
Dan

Thursday, September 6, 2007

We have hair !!

We have the beginnings of hair, really.

In the midst of everything else, this is good news. We don't know why, or how it will develop, but any nudge toward normalcy is a good thing. We also had some great news that Masha, our Russian exchange student from 2005/6 is planning a visit to America to visit us. How wonderful!

Deb continues to battle fatigue, but she still has spurts of activity that allows her to get a lot done.

Last Friday we drove to Cedarberg Wisconsin, just north of Milwaukee. It is a lovely old town with lots of shopping and good places to eat. We ate in the renovated woolen mill at the Cream and Crepe. There are lots of old preserved buildings downtown and due to the time of day and being a week day, we didn't have much competition for parking or floor space in the shops.

Saturday we had a wedding and a surprise 40Th birthday party. Both were very enjoyable. Sunday we met with Linda, another breast cancer survivor, who was here from Iowa to visit her son and his family. Deb works with her daughter in law. Monday we went to the movies and had dinner at Culvers.

It is remarkable how much fun it is to do these things. Years ago I recall that most of our activities involved much more energy and endurance, such as spending the day walking around Chicago or a frenzied approach to yard maintenance. But it seems with age also comes a reluctance to do too much, to perhaps have something in reserve. I remember when my mom and dad started being content with staying home and reading or watching TV, and how I was amused that they could ignore all the many activities that were available. Perhaps with age does come wisdom.

Youth is full of sport, age's breath is short; youth is nimble, age is lame; Youth is hot and bold, age is weak and cold; Youth is wild, and age is tame.

William Shakespeare

It is notable, the number of people who have come forward to share their cancer stories with us. I must admit that I have shared this blog with many people, some who are casual acquaintances, but the response has been terrific. We have shared so many stories of both victory and loss.

I would stress that we are stressed by this, and it takes considerable effort to keep our focus, probably more for me than Deb. I would not paint this journey as a sonnet or a picnic, as sometimes things seem to crowd us into corners.

Adversity is a great teacher, but this teacher makes us pay dearly for its instruction; and often the profit we derive, is not worth the price we paid.

Jean Jacques Rousseau

Now at the half way of chemo we look forward to a decision on surgery.

October will be busy with Deb's 30th high school class reunion and the 50th Wedding Aniversary celebration for her Aunt Joyce and Uncle Dick.


Thanks to all for reading this and remembering both of us in your prayers. We praise God for His Mercy and Grace, and we are grateful for all of your support.

Love,

Dan

Monday, August 27, 2007

Wonderful Monotony

Hello everyone,

Deb's chemo sessions have been going very well. She is very tired after the sessions on Thursdays, but is able to go to work on Friday. She has much better energy and although she still tires easily, she is able to do a lot. Cooking, laundry, accounting and so much more. Deb celebrated her 30Th anniversary at Kemper on Friday.

Now the focus shifts to the continuing shrinkage of the tumor. We will have to wait until we have a more precise test to see what it actually looks like, but we expect a follow up MRI within the next two weeks or so.

We continue on with the certainty that God watches over us and that your prayers are heard and answered. We thank each of you for reading this blog and sharing your time with us. We may never personally know or be able to thank each person who helped with their prayers, but we thank you for your wonderful efforts.

"When we walk to the edge of all the light we have, and take the step into the darkness of the unknown, we must believe that one of two things will happen. There will be something solid for us to stand on... or we will be taught to fly." ~ Frank Outlaw

We have been taught to fly, to be certain of what we see, and to have faith in what we cannot see. Please continue to remember all those who struggle with cancer, and also those who are in remission.

Our warmest wishes for a great week and a good holiday.

Dan and Deb Harrell

Thursday, August 16, 2007

We're Shrinking!

Hello all,

Good news yesterday. Dr. Compagnoni, Deb's surgeon was excited about a definite size reduction in the tumor. Chemo will continue for a while and Deb will probably have the tumor marked, which involves placing metal pieces at the points around the tumor so it can be found by x ray.

Continued shrinkage may delay surgery for a while and could eliminate it altogether. We don't want to get to far ahead yet, but this is a wonderful development, praise God!

The other good news is that Deb is having a much better time with chemo now then before, with less fatigue and more energy. This is probably due to the switch to Taxol. Other than double cheeseburgers from Mickey D's before chemo, she isn't excited by food. Most everything lacks taste. She did go to the Stage Stop in Wilmot with the girls this week and said she could taste the steak. No surprise there.

Last Saturday we drove up to the Elegant Farmer in Mukwonago WI. Their speciality is apple pie baked in a paper bag. It was delicious. Lot's of other stuff there too, like cherry brats, cider baked ham and other pies. A very cool place.

We now have baby bunnies. We have to watch Strider the wonder dog, so she doesn't hurt them. They were naked things last week and now they are furry hopping things that you can tell will be rabbits soon. We have a Robin's nest in the evergreen that fascinates Strider. She stands on her hind feet and peers into the tree to see the nest.

Deb has been doing a lot of weeding, so the yard looks great.

We continue to pray for others who have health problems and thank those that pray for us.

More later,

Dan

Saturday, August 11, 2007

Another step forward.

Happy Saturday!

This is a week that went according to the normal plan. Deb felt rested and energetic most of the week, with the exception of Thursday evening after having chemo. In fact, Deb could not believe how good she felt. Truly a great blessing.

The plan is two or three more sessions of chemo, then a MRI to see if any reduction has occurred, and then surgery, or more chemo and another MRI. There is some thought that the tumor has reduced in size. Most people with cancer, if the blog sites are any indication, want to have get it removed from their body as soon as possible.

Cancer seems test our emotional, physical and certainly our spiritual reserves every day.

The highs and lows we experience are mostly due to the uncertainty of the outcome, and the speed bumps and setbacks all along the way. If everyone reacted the same way to treatment, we'd all have a better idea of how this is all supposed to come out.

The physical reaction to having large vats of poison dumped in one's body every week or so are so individual and varied that they cannot be predicted with any certainty. Of course the brochures all talk about the nausea and hair loss, but the loss of taste is probably the biggest thing bugging Deb right now. Except me, of course. She just can't taste much. Things I think are spicy just don't give her much reaction, except when they start doing the bongos in her stomach.

And to think, that after surgery, more chemo and perhaps some radiation, which brings a new and different set of reactions.

Spiritually, we are doing very well. We are part of God's plan and we praise him for a good life and His grace and mercy. God may have allowed this to happen, but it is our reaction to it that says more about our walk. Sure, we are optimistic, and we have been, and yes, the initial diagnosis was positive for a recovery, but we both know that anything could happen in the next few months. We would rather enjoy what we have and look to the future with hope and thanks than have bitterness or regrets.

Deb continues to get wonderful cards and messages, many prayers lifting her toward God's embrace. Giving her the certainty of God's healing hands and the love of so many people.

We miss our ability to travel and visit friends like Skip and Dorothy, Joe and Kim and Kathi and Jim. Even doing much locally is unpredictable, as we both try to catch up on everything on the weekend, especially rest.

This weekend is the 60 mile Susan G. Koman breast cancer walk. You will know them by their caps and scarves covering their heads, by their pins and clothing that says we have cancer. But more, you will know them by the look in their eyes and the smiles that tell of battles fought, some won, some lost, of those that came before and sadly, those who will come later. When you see them, give them a hug. They will all know you care and smile all the more.

May those who love us, love us. And those who hate us, may God turn their hearts. And if he doesn't turn their hearts, may he turn their ankels so we'll know them by their limping.
Author:
Celts, Ancient

You gotta love the Irish!

Thank you, everyone.

Wednesday, August 1, 2007

Marching to a different beat

Dear Friends,

Deb had her first week with Taxol. She was tired on Thursday night and Friday, but had a great surge on Sunday when she returned from a outdoor wedding shower. This week she has been tired, but today she feels well enough for dinner. So tonight I let her open the cereal and get the milk from the refrigerator. Kidding, kidding, kidding. OK. She fixed a nice meal tonight and I helped with the dishes.

She misses her sense of taste the most. Perhaps it's her sense of smell, but most food doesn't have enough taste to interest her, not that she's given up eating, but most food tastes bland. There are some of her favorite vegetables and fruits she shouldn't eat, so that adds to the bland diet too.

We have been working in the yard the last few days, cleaning up an area where we took down a tree and the weeds took over. Couple that with the 90 degree temps we've had and it becomes a bear out there.

Deb goes for chemo again tomorrow. We believe that she will be checked by a MRI in three or four weeks and without significant reduction in the size of the tumor, she will probably have surgery. Following that she will probably have more chemo and perhaps radiation.

In faith there is enough light for those who want to believe and enough shadows to blind those who don't. Blaise Pascal

We continue in faith to face this journey. We couldn't sleep at night or focus on anything else if not for our faith. The power of your prayers and the grace and mercy of God, continue to make all of this bearable for us.


A true friend knows your weaknesses but shows you your strengths; feels your fears but fortifies your faith; sees your anxieties but frees your spirit; recognizes your disabilities but emphasizes your possibilities.
- William Arthur Ward


So, we struggle to find the words to say thank you to so many people who say silent prayers for Deb, and in doing so, change our lives and theirs in ways unfathomable.

I'd like to ask all of you to say a prayer for all the care givers out there. I've been blessed that Deb hasn't had to have much help. She still does the laundry, cooks when she can and pays the bills. But there are those, such as my sister Diane and her husband Ken who have cared for my bed ridden mother for two years, every single day. They are typical of so many who struggle to care for the difficult, and try to deal with their own feelings of resentment and hopelessness. We can easily identify the lame and the sick, but consider those who have no visible sign of the struggle they face everyday.

Thank you for reading this and for your comments.

God Bless

Dan