Wednesday, August 1, 2007

Marching to a different beat

Dear Friends,

Deb had her first week with Taxol. She was tired on Thursday night and Friday, but had a great surge on Sunday when she returned from a outdoor wedding shower. This week she has been tired, but today she feels well enough for dinner. So tonight I let her open the cereal and get the milk from the refrigerator. Kidding, kidding, kidding. OK. She fixed a nice meal tonight and I helped with the dishes.

She misses her sense of taste the most. Perhaps it's her sense of smell, but most food doesn't have enough taste to interest her, not that she's given up eating, but most food tastes bland. There are some of her favorite vegetables and fruits she shouldn't eat, so that adds to the bland diet too.

We have been working in the yard the last few days, cleaning up an area where we took down a tree and the weeds took over. Couple that with the 90 degree temps we've had and it becomes a bear out there.

Deb goes for chemo again tomorrow. We believe that she will be checked by a MRI in three or four weeks and without significant reduction in the size of the tumor, she will probably have surgery. Following that she will probably have more chemo and perhaps radiation.

In faith there is enough light for those who want to believe and enough shadows to blind those who don't. Blaise Pascal

We continue in faith to face this journey. We couldn't sleep at night or focus on anything else if not for our faith. The power of your prayers and the grace and mercy of God, continue to make all of this bearable for us.


A true friend knows your weaknesses but shows you your strengths; feels your fears but fortifies your faith; sees your anxieties but frees your spirit; recognizes your disabilities but emphasizes your possibilities.
- William Arthur Ward


So, we struggle to find the words to say thank you to so many people who say silent prayers for Deb, and in doing so, change our lives and theirs in ways unfathomable.

I'd like to ask all of you to say a prayer for all the care givers out there. I've been blessed that Deb hasn't had to have much help. She still does the laundry, cooks when she can and pays the bills. But there are those, such as my sister Diane and her husband Ken who have cared for my bed ridden mother for two years, every single day. They are typical of so many who struggle to care for the difficult, and try to deal with their own feelings of resentment and hopelessness. We can easily identify the lame and the sick, but consider those who have no visible sign of the struggle they face everyday.

Thank you for reading this and for your comments.

God Bless

Dan

Thursday, July 19, 2007

Ups and Downs

Hello from Medical Central.

Deb continues to battle fatigue. During the week she is able to work and do some chores around here, but she tires easily. I think she is disappointed that a new round of chemo is starting next week. I'm sure she would have preferred to have the surgery and start the next phase of treatment.

I have been thinking a lot about all she does and how she is able to carry on with life without any drama. I remember being so impressed with her when we met, and after we married, she seemed to always know what I needed and how to look on the positive side of life. Deb always liked to let situations develop and her patience was the key to our relationship. In fact, I don't know anyone she ever lost patience in or wrote off. Deb has a talent for keeping friends and overlooking any negatives. She is able to wait for people to change and enjoy the changes.

I am reading this and realize how pitiful it is in capturing the Deb I love. I know that she has made a difference in many lives. Certainly Sebastian and Masha, but so too with Kathi and Jim, Kris and Aaron and Erin and Rob. Her strength is quiet but always there. There is always a smile and a laugh. She is generous, loving, forgiving and makes great meat loaf.

We are spending less time picking up and weeding the garden, and more time snuggling in bed with Strider the wonder dog. We try to hug more and argue less. We aren't trying to finish everything on the list of to do items, but spend more time relaxing. This isn't to say that Deb isn't active or doing things, but she and I know that some of this stuff will still be there tomorrow.

I don't know where the time goes. Kathi and Jim are now married fifteen years, and Kris and Bud fourteen. Wow!


My great hope is to laugh as much as I cry; to get my work done and try to love somebody and have the courage to accept the love in return.
Author:
Maya Angelou 1928-, African-American poet, Writer, Performer


To love means loving the unlovable. To forgive means pardoning the unpardonable. Faith means believing the unbelievable. Hope means hoping when everything seems hopeless.
Author:
Gilbert K. Chesterton 1874-1936, British Author

Sebastian has been home over a month. His parents must be very happy.

Take care,

Dan

Thursday, July 12, 2007

Tired Blood and Fatigue

Hello Campers!

Someone told me that I should respect my elders, but it's getting a lot harder to find any

No seriously, I'm here all week. Ta DA!

I had a wild day at work today, as if it isn't obvious. We continue to adjust, my new boss and I, he all full of black and white and me so full of gray. He is going to be a good one, on par, I believe, with the best I've had.

Deb had blood drawn today and her red blood count was lower than ever, so she had a shot of Aranesp, to boost her count. She will get one every two weeks.

Last week wasn't the best one we've had, as Deb was so fatigued that from her Chemo on Tuesday until Saturday night she couldn't get too far from her bed. Thankfully, she had scheduled Thursday and Friday off work.

She starts Paclitaxel, Taxol, two weeks from today. The side effects look a lot like the ones she has now. We hope that by having the chemo every week, the side effect will be manageable. Someone who had Taxol every three weeks mentioned she had to stop working, so probably not what Deb needed to hear, but good, so we can be vigilant. Deb continues to work, feeling that being slightly off at work is better than being home.

Tonight is just a beautiful portrait from God. The temp is in the seventies, the sun is shining through the trees. Lately we've had the most beautiful sunsets. Deb and I enjoy walking through the yard with Strider.

Love is a temporary madness. It erupts like an earthquake and then subsides. And when it subsides you have to make a decision. You have to work out whether your roots have become so entwined together that it is inconceivable that you should ever part. Because this is what love is. Love is not breathlessness, it is not excitement, it is not the promulgation of promises of eternal passion. That is just being "in love" which any of us can convince ourselves we are.
Love itself is what is left over when being in love has burned away, and this is both an art and a fortunate accident. Your mother and I had it, we had roots that grew towards each other underground, and when all the pretty blossom had fallen from our branches we found that we were one tree and not two.- Captain Corelli's Mandolin

I had to include that, something I found that sure seems to crystallize how love is when it is true. How close are Deb and I to that, I'll have to ask her. It probably changes from day to day. But I can't imagine life without Deb, and so we are entwined. I mean, our silverware is all mixed together for God's sake.

We had a great note from Gaby Felkel, Sebastian's mother along with a wonderful torte from Augsburg, Germany that was very good.

We still find ourselves amazed by all the wonderful people who ask about Deb and continue to pray for her. There are so many, including some great people at work, including conductors and people in my office. There is no way to thank them enough except for Deb to recover, so they can all see the power of prayer. No matter what happens, we praise God. We thank him for the good news about Danny and his remission. We pray he continues to heal.

Thanks everyone for reading this. It's become a good way for me to chronicle Deb's week, and mine.

Wednesday, July 4, 2007

A Change in Direction

Hello All!

Happy Independence Day. Remember that Freedom isn't Free. Please remember all those who have died serving the cause of freedom and those who continue to serve in far away places.

The past week has been interesting and challenging, bringing new feelings and old issues to the surface.

Deb seemed to have developed a sensitivity to the smell of the chemo lab. In fact, looking at her new IPod cause her to recall the smell, so naturally, she avoided looking at the IPod at every opportunity. She told me that she didn't want to have the chemo session yesterday, the first time she felt that way enough to vocalize it to anyone. It was switched from Thursday to Tuesday and along with today, Independence Day, Deb will be off work until next Monday. When she arrived the scent wasn't there so she was able to read her new, personally autographed copy of Janet Evonovich's book, "Lean Mean Thirteen" during the session. Thank you Kathi!

She came home with the news that she is going to start Taxol once a week for the next twelve weeks, in place of the current drugs. The tumor hasn't reduced enough to be removed, and since it hasn't enlarged, there isn't a reason to rush into surgery. There was an option of having Taxol every three weeks, but the dose would be much stronger with the resulting increase in side effects. She also has to take steroids before the first treatment.

Speaking of side effects, there is the vomiting today, without warning, so I think the family picnic is out. Looking at the side effects of Taxol would make an alcoholic sober. Google it and then imagine twelve weeks of doses. Can't be something to look forward to.

Elsewhere, things are going well, albeit without the hum of teenage television and grocery bills. We haven't had anything further from Sebastian, but his parents sent two beautiful books, one about Augsburg and one about Bavaria. They also sent an Augsburg Torte, a beautiful and delicious concoction.

Deb continues to get great support from family and friends. Cards and phone calls cheer her, and the prayers of everyone make the real difference, as we know that God's plan will prevail in all things.

Please take a moment and check out this site. http://rubyshooz.wordpress.com/
and read the poem "To Whom it May Concern"

Our sincere appreciation to everyone for their support, love, prayers and hugs, as both of us try to deal with the silent killer called breast cancer. We just learned that Teresa, my sister's sister-in-law is testing for cancer, both breast and cervix. She would be only the latest of several siblings that have battled cancer. Please pray for Teresa, as the time before knowing the full truth can be a long, lonely nightmare, filled with stress and insomnia.

Maya Angelou tells us, "I've learned that you shouldn't go through life with a catcher's mitt on both hands; you need to be able to throw something back.". Indeed!

Love to all,

Dan

Tuesday, June 26, 2007

The Wind Up

Hi everyone,

Thanks for thinking about us. We had our whirlwind tour of Southern Illinois over the weekend, returning last night. Alto Pass is where my Dad's family lives, except for the Dad and his portion of the family, that moved to Pontiac Michigan in the 30's. After taking my Dad and Brother Dennis to Alto Pass (south of Carbondale) in 2001 we have gone back to the family picnic twice, including this year. It was very moving to see the places my Dad called home, and to meet some very wonderful people, all related some how to me.

We had the pleasure of meeting Evelyn this year, a breast cancer survivor. She had great words of encouragement for Deb. We will miss Tempa and Raymond, first cousins to my Dad, who left us this past year. We miss most Melvin, who taught us a lot about being friends and showed us the pleasures of gardening when we were there last. I know his wife Joan, and all the family miss his humor, and his love.

Perhaps I'm taking this blog thing too far, as now I've given it to our benefits department at work and a wonderful person at Blue Cross who is most helpful with figuring out the medical bills for us. It continues to amaze me how many people say they are praying for us, because such a volume of prayer will surly speed to God on the wings of his angels.

Deb is doing well with the exception of acid reflux and fatigue. She seems to be a bit more tired as this goes on, but we expected that to be the case. She continues to face all the treatment, knowing surgery will come soon, followed by more chemotherapy and radiation. She could be depressed but she is an inspiration with her patience and perseverance. Plus she looks so cool with all the various hats and wraps.


Reflect upon your present blessings - of which every man has many - not on your past misfortunes, of which all men have some.Charles Dickens


We are very glad to know our friend Danny has now entered the monitoring phase. He and Marge will now concentrate on keeping his weight up (boy, do I wish I had that issue) and healing as he has a check up and blood work in six months.

So, we are at another way point. Deb has chemo next week, and after that the doctors will decide the next step. As we wait, we are buoyed by the love and prayers of so many of you, our friends and family. Remember my mom in your prayers, as she waits for our Lord to come for her. Her road hasn't been easy, and she has amazed the health care workers with her ability to hang on here, but there must still be something for her to do, before she leaves.

Remember those who you love, but perhaps haven't seen or spoken with in a while. With so much death around us, celebrate life with a phone call or a letter to someone. Make their day special, and your's will be special too!

Don’t let death be your cure for procrastination.

God Bless all,

Dan



Sunday, June 17, 2007

Goodbye to Sebastian

Hi everyone, and Happy Father's Day!

It was four years June 5Th that my dad left us. I suspect that every father's day will bring the memory of his passing to me and the rest of the family. Oh, by the way, if you're looking for something good to read, consider picking up a copy of "For One More Day" by Mitch Albom. It's a terrific book about spending one more day with a departed parent.

Deb had her third chemo on Thursday. She was very tired on Thursday night and Friday, so she didn't go with Sebastian and me to Chicago, but rather stayed home and rested. Friday was her birthday and so when Sebastian and I came home we had Ben Thomas over and did some great steaks on the grill.

Deb was still tired on Sunday morning and missed church. Nothing too much different about the chemo experience this time, and a sense of routine starts to build.

The next chemo is July 3rd so we will see after that how the tumor has responded. I believe the doctors are intentionally vague so that patients and their families are not holding unrealistic expectations. So much of this treatment depends on how the individual patient reacts, and then adjustments are made on the fly. I expect that if the tumor has shrunk, surgery will be scheduled to remove it. That will be followed by chemo and perhaps radiation.

It was an emotional weekend anyway with Sebastian leaving on Saturday for Germany and his family. His flight left O'Hare about 2:30pm and was scheduled to arrive around 6am in Munich, about 11pm Chicago time. He wrote to say he arrived very tired and still battling the cough he had for about two weeks before going home.

He had just returned from Philadelphia where he spent a week with daughter Erin and her husband Rob. He saw New York City, Washington D.C. and Philadelphia, with lots of history including ground zero, the Statue of Liberty and all of the monuments in D.C. We are very thankful to Erin and Rob for taking the time and making the effort to host Sebastian.

I took Friday off and we went to the Sears Tower to really see Chicago. We had lunch at Blackies and visited my office to see the really important people in my life, or at least that's what they asked me to say.

Looking back on having Sebastian makes me glad he was here and grateful for showing me what having a son (I have three daughters) would have been like. He was really a treasure to have. Good student, helpful and dependable. I think I still favor the daughters. No competition for the TV remote, the PC or the chips :).

Deb is missing him. I know we will miss having a new student but it will be easier not having one this next year until Deb's health is more certain.

Deb's sister Anita had all the family over for Father's day today. It was a great time, as usual. Kathi and Erin called to wish me a happy father's day and happy birthday tomorrow.

We are going to southern Illinois next weekend for the Harrell family reunion.

Finally, I feel like we have received a special blessing from God because of all of your prayers and good wishes. Your cards and notes are so precious. Deb seems visibly lifted by the outpouring of love she receives every day. There is a lot of stress in our lives right now, but we feel so blessed to have good friends helping us.

Please consider praying for Danny, our friend who is still battling cancer and the effects of radiation. There are so many people for whom cancer is a lonely battle, as they are old or without friends or family. Please pause a moment to remember them with a special prayer. Ask God in all his mercy to heal and comfort them, for we know he is the Great Physician and His love endures forever.

God Bless You All.

Dan

Wednesday, June 6, 2007

Ruminations

Hello everyone!

We've started to experience some routine with Deb's cancer treatment. Blood test every Thursday, Chemo every three weeks, visit the doctor every week. But in the routine is the comfort of predictability, not the edgy uncertainty of diagnosis and treatment plans. A fancy way of saying not much has changed in the last week.

Except-

Both Dr. Weyburn and Dr. Compagnoni think there is some change in the tumor. It started out the size of a lime, so perhaps now it's a small plum? A walnut? We won't know until after the last chemo on July 5th, and probably a MRI exam, just what will happen next. Will it be small enough for surgery or will further chemo reduce it more, so the surgery will not destroy the breast.

After surgery comes radiation and more chemo, we understand.

Deb is doing particularly well with this hair thing. She now has a variety of hats and scarves to wear, including some scarves she always wanted to wear but could not find the exact ensemble to compliment them. Her wig looks great on her and so she has lots of options. I wish I did.

There were several articles in the Chicago Tribune and Sun Times the last few days about breast cancer. It may have something to do with the charity walks for cancer going on now. One article explores a new medication aimed at reducing the risk of cancer returning after the initial treatment. New thoughts on radiation treatment are discussed too. It appears that even after a successful initial battle with breast cancer, and a clean bill of health, there is a statistical possibility of cancer returning.

Sebastian left for Philadelphia yesterday for a week with Erin and Rob (and Quinn too). He is excited to explore new American cities and is hoping to see some of the landmarks, such as the Statue of Liberty and the Mall in Washington D.C. His flight was delayed a bit but when Erin found him at the baggage carousel he was helping an elderly couple with their baggage. He is a terrific guy!

Soon he leaves for Germany. We will miss his smile and his laugh. We are the richer for his being here. What will we do without the King of Queens and the NBA?

We offer our prayers for all of you that may be in a battle too. Life is both a joy and a struggle. While we are preoccupied with our issues, we know that there is a lot of hurt, loneliness and health problems out there. We take a lot of comfort in the certainty of prayer and faith.

Please accept our thanks to everyone for their prayers and thoughts.

God Bless

Dan