Thursday, November 8, 2007
Half Way Home
It's 6 am on Thursday. Yesterday went to the doctor to hear the results of the pathology tests on the tissue collected during surgery last Friday. She also had her drain removed.
Dr. Compagnoni told us that 15 lymph nodes had been removed during surgery. Once the first sentinel lymph node was tested in the OR and found to be cancerous, more were removed.
The report indicates that three of the fifteen had disease. This is one of those glass half full or half empty things. It's good because it appears that no real spread of the disease is present, but with any disease in the lymph nodes, there is a chance and a likelihood that cancer cells, microscopic in nature, have migrated elsewhere in the body.
Dr. Compagnoni had spoken already to Dr. Weyburn, the oncologist, and Deb will meet with a radiologist soon to map a series of radiology treatments, lasting perhaps six to seven weeks. She will go once a day, as we understand it, and the side effects should be localized. That is, some burning at the radiation site, but nothing like what she had, and still has from the chemotherapy.
The other interesting piece of news is the pathological report on the tumor. Contained in the breast tissue removed during surgery was a tumor, two centimeters in length, what remained from the six centimeter tumor identified in the original MRI. Six centimeters is the length of my smallest finger from the tip to my palm. Two centimeters. is about 3 /4 of an inch. That is the length, not the volume, of course. Why it wasn't seen by the MRI is a mystery, but it underscores, in my opinion the importance of follow up testing.
The last few days have been a roller coaster for Deb. She has been thrilled with all the phone calls and visits. The e mails to me and to her have lifted us so much. We even have people praying for us that don't normally pray, and can you imagine how God must be pleased with that. I never forget how He uses everything for good. Deb's cancer must seem to most people something without any redeeming quality, but if someone turns to God in prayer, for the first time, or after a long absence, how powerful that is in His sight. What a blessing to Deb.
The dinner brigade has been supplied us with gourmet meals and taken that completely off our minds. The great people in my area at Metra have arranged for food to be delivered to us next week, so our blessings continue. Yesterday, Lori, Dee and Mary, of Deb's monthly dinner group, delivered lunch and kept her company until close to when she left for the doctors. Deb's group at Kemper sent the most beautiful flower arrangement and with it several gift certificates for local restaurants. At the very least, we will no go hungry anytime soon :). What a blessing!
Kathi, my daughter, came in from Michigan yesterday at about noon. She and I had some time to spend together before Deb's doctor's appointment at 4:30pm, so we had lunch at Sweet Tomatoes, and shopped at Woodfield Mall in Schaumburg. Loni Marik took Deb to the doctors. Deb has been very frightened and close to tears the last few day, concerned and prepared for the worst.
Last night was a relief in most ways, but she had more pain than usual in her chest.
So we continue on with this journey. Our compass direction set, but without really knowing the final destination. The doctors may quibble with this, but I believe that most times the final results of cancer treatment is out of their hands, and they do the things that have a high percentage of success and hope for the best.
Life has no other discipline to impose, if we would but realize it, than to accept life unquestioningly. Everything we shut our eyes to, everything we run away from, everything we deny, denigrate or despise, serves to defeat us in the end. What seems nasty, painful, evil, can become a source of beauty, joy and strength, if faced with an open mind. Every moment is a golden one for him who has the vision to recognize it as such.
Author:
Henry Miller 1891-1980, American Author
Another way to look at cancer and chemo.
My veins are filled, once a week with a Neapolitan carpet cleaner distilled from the Adriatic and I am as bald as an egg. However I still get around and am mean to cats.
Author:
John Cheever 1912-1982, American Author
God Bless all of you for your prayers, love, patience, help and friendship.
Monday, November 5, 2007
Progress of sorts
Deb was discharged from the hospital about 3:30pm on Saturday. She was very tired and went to bed when we arrived home. She does not have much pain. She takes an Advil four times a day. She is also taking an anti biotic four times a day for five days. She has a drain that collects fluid from her surgery site. I empty that twice a day and record the fluid amount. About 20 ml every 12 hours.
The drain will come out Wednesday and Deb can shower after that. On Wednesday she will visit the doctor to learn about the pathology results on the other tissue samples and what lies in store for her as far as treatment. We pray for good news, of course.
Sunday Deb stayed home while I went to church. After church I fixed eggs and bacon for us. Later Chuck and Loni Marik brought dinner to us, including a wonderful apple pie. Chuck and Loni have arranged with our friends that we will have dinner delivered for the next few days. We've never been so overwhelmed with such kindness. What a blessing!
Deb stayed up all day after I came home from church. She has better color and more energy that I expected she would have so soon after surgery.
Today Strider, the wonder dog, comes home. She has been with Deb's parents since Thursday night. It has been so quiet. Gabby the cat, normally hiding from the dog in the basement, has spent every night sleeping with me and has taken to keeping us company during the day. Alas, back to reality for her today.
I'm spending the week with Deb. Kathi, my eldest, will be here Wednesday through Sunday to help. I'll be back to work next week, with others looking in on Deb, then I'll be off Thanksgiving week.
I'd like to publicly thank several people. First, the doctors and their staffs. Both Dr. Weyburn and Dr. Compagnoni have shown compassion and patience in their approach to Deb and me from the beginning. The wonderful people in the chemotherapy area and the office staff at Dr. Weyburn's have gone above and beyond to make Deb's visits comfortable and to answer any questions. What we have seen from them is more than one could ever expect. We don't know where this is headed yet, but the medical team has done everything they could to beat this disease.
My co-workers have been fantastic for me. There willingness to help and to offer comfort and hope knows no limits. Every one of them have made my load lighter with their smiles and prayers. Who ever said you had to separate church and state :). Mary and Darlene have graciously listened to all my stories. Rick, Sue Ann and Mike have been supportive at every turn.
Deb's work mates at Kemper have been so supportive for her. People she hadn't met before have gone out of their way to offer prayers and support. People have come forward to share their cancer stories with her, giving her hope. Others have taken time since the April diagnosis to visit her and offer concern and support for her recovery. E mails from those no longer at the Long Grove location and phone calls from former employees have lifted her spirits.
Our family, both here and in Michigan, have been there from the start. Their support, calls, love and prayers have cheered Deb considerably and made it easier for her to go on day by day. I can't imagine having a child with cancer, so I can only imagine how Deb's parents must feel.
We will always have a Russian daughter. Masha has had to cope with this from six thousand miles away. Her American mom has cancer and she fells helpless. Her support by e mail and her expression of her love for Deb have kept the emotional bond in place created during her time with us.
Finally our friends. Their support has been remarkable. Loni and Chuck have done so much. John Puleo, Julie and Perry Fish have been there so much for us. The surprise visit from Deb Brinker and Deb McReynolds last week, all the hugs at church. Calls from Pastor Spangler and Jim Van Peursem after the surgery. The dinner brigade. The e mail support from Peggy and Ilona for me. The constant support, love and encouragement on the train ride home from Edwina Vass. The prayers offered by the neighbors. The E cards from Nicky. The counseling with Pastor Tews, that righted our emotional and spiritual ship at a critical time.
So we start another week in this journey. We'll know more about the compass heading after Wednesday. No matter what happens, we know our lives have been made richer by the kindness, love and support of so many people who we can never properly thank for making this time of our life hopeful instead of hopeless.
God Bless every one of you.
Dan
Friday, November 2, 2007
No easy victory
We arrived at the hospital promptly at noon. Interviews were taken, noting all the proper information. Blood was drawn and four needles were inserted in the breast to inject a radioactive dye. I left during that procedure. The nurses were pleasant, professional and competent. Dr. Compagnoni arrived about 2:45pm and outlined what would happen in surgery. She thought somewhere between an hour and a half and two hours in surgery and about an hour in recovery would be sufficient.
They took Deb promptly at 3pm, and I started to read the book I brought, Playing for Pizza. Time passed and Deb's parents arrived to keep me company a bit after four. The receptionist advised that Deb was still in surgery, and that it had started at 3:45.
So we became a little concerned at six pm without any real word on the delay. Finally at about 7:10 Dr. Compagnoni met with us. She told us that the frozen section of the sentinel lymph node tested in surgery indicated the presence of some disease. Three other lymph nodes were removed and would be tested by the pathologist. The delay in the start of surgery was because a breathing tube was necessary and it took some time to get it in place.
If all four tissue samples had disease (cancer), then she and the oncologist, Dr. Weyburn, would have to decide what further treatment would be necessary. Perhaps more chemo or radiation. Or both! It will seem like an eternity until Wednesday.
Sentinel Lymph Node Dissection
One of the most talked about new surgical techniques in breast cancer is sentinel lymph node dissection. This is an alternative to standard axillary lymph node dissection, and many women believe that it can spare them more invasive surgery and side effects. However, the sentinel node procedure is not appropriate for everyone. Recent research shows that even after the sentinel node procedure, more surgery may be necessary. It has its own limitations and drawbacks, and must be done by a surgeon who has significant experience with the technique.
The dictionary defines "sentinel" as a guard, watchdog, or protector. Likewise, the sentinal lymph node is the first node "standing guard" for your breast. In sentinel lymph node dissection, the surgeon looks for the very first lymph node that filters fluid draining away from the area of the breast that contained the breast cancer. If cancer cells are breaking away from the tumor and traveling away from your breast via the lymph system, the sentinel lymph node is more likely than other lymph nodes to contain cancer.
The idea behind sentinel node dissection is this: Instead of removing ten or more lymph nodes and analyzing all of them to look for cancer, remove only the one node that is most likely to have it. If this node is clean, chances are the other nodes have not been affected. In reality, the surgeon usually removes a cluster of two or three nodes—the sentinel node and those closest to it.
Strategic removal of just one or a few key underarm nodes can accurately assess overall lymph node status in women who have relatively small breast cancers (no more than two centimeters) and who have lymph nodes that don't feel abnormal before surgery. Studies have shown that after almost five years, women who had just the sentinel node removed were as likely to be alive and free of cancer as women who had more lymph nodes removed. Longer follow-up will help us better understand the long-term pros and cons of sentinel lymph node dissection
Wednesday, the drain will be removed and she can take a shower. The stitches will dissolve automatically. We will have the results of the pathologist's findings.
We got to see her about 8:30pm. Deb was pale, cold to the touch and got sick after a couple of bites of jello.
Her mom and dad stayed for a few minutes more as I left to come home.
Deb is in room 746. I don't know now if she will be home tomorrow or not. It depends on how she feels.
This isn't necessarily bad news, as we will know more on Wednesday. There is a good chance, according to Dr. Compagnoni, that the other three samples will not have evidence of cancer.
So we thank God that Deb made it through surgery.
Please say a prayer for our friend John Beebe. John is in the hospital with the diagnosis still to come, but artery blockage is mentioned.
I updated this at 3am the first time. Now it's 8:47 am and Virginia at the nursing station just told me Deb is eating breakfast and feeling much better this morning. Woopee!!
Dan
Just befor surgery
Here we are in a house so quiet we question our hearing. I took Strider to Deb’s parents last night so we’d have a bit less to do this morning. They will keep her until Monday, and then come over to visit Deb and bring dinner! We don’t have to be at the hospital until noon. Surgery at 3pm and I’ll update the blog when I can.
Deb’s doing well this morning. The past week has been filled with phone calls, visits, cards and flowers from friends, co workers and family, all of which has served to remind Deb she is not alone in this struggle. On Halloween we had a surprise visit from Deb Brinker, who grew up down the street from Deb, and last night Deb McReynolds came over to pray with us. It’s in our nature to worry and fret about this stuff, but we know there are a lot of people who are praying for a successful surgery and recovery, and that cheers us a lot.
Loni and Chuck Marik have arranged for friends and fellow COF members to bring dinner to us most of next week. Wow! Deb was afraid I’d actually cook something, I think and cereal would get old after a few days.
I’m sitting here, looking out the window at the frost covered ground. It was below freezing last night. I seem to always think about life and the seasons. Like Sinatra crooned, “It’s a long, long time, from May to September, but the days grow short, when you reach December”. Autumn is a time when the days grow short, and we face the storms and cloudy skies of winter ahead. Life is like that too, but we know when the hour comes we have a place prepared for us.
Deb’s parents will join me at the hospital later. Thanks for all the prayers and love.
God Bless,
Dan
Wednesday, October 24, 2007
The Schedule
Deb is scheduled for surgery on Friday, November 2, 2007 at Centegra in McHenry. The pertinent details are as follows.
Centegra Northern Illinois Medical Center, 4201 Medical Center Drive, McHenry, IL 60050Phone: 815-344-5000. Our address is 1902 Hunters Lane, Spring Grove, IL 60081. When Deb comes home, you may call us at 815 675 6130 or write to Deb at deborahlharrell@yahoo.com
Surgery is scheduled for 3pm. I imagine Deb will be in the hospital for a couple of days. I'll be off the next week after her surgery to be with her.
As you can imagine, for a girl who never had surgery or was in a hospital as a patient from her birth until May of this year to have her medi port implant, she is having some problems with sleep and stress.
She will have a mastectomy without reconstruction. We don't know about the aftercare yet, whether radiation will be involved or not, but she visits the oncologist tomorrow and I'll post anything that qualifies as new information.
I read the old posts of this blog over the weekend, and I was amazed how this journey has moved along and the changes in our feelings. Through it all, we have had the support, love and prayers of many fantastic people. People, some of whom we don't know, and will never meet, have added their petitions to God for Deb's healing and the restoration of her complete health, both physical and emotional. All we can say is may God bless you.
We acknowledge God knows how this will end, and has known since the beginning of time. We believe that we will see some day how our brief life fits into the fabric of time. We know our human emotions of fear and doubt exist because we are not perfect in our trust of God's plan for us.
Take care, all of you, and make Wednesday a spontaneous hug day. Trade a hug for a smile from someone who needs an emotional pick me up.
A Psalm of Life
Poem lyrics of A Psalm of Life by Henry Wadsworth Longfellow.
Tell me not in mournful numbers, Life is but an empty dream! For the soul is dead that slumbers, And things are not what they seem. Life is real! Life is earnest! And the grave is not its goal; Dust thou are, to dust thou returnest,Was not spoken of the soul. Not enjoyment, and not sorrow, Is our destined end or way; But to act, that each tomorrow Find us farther than today. Art is long, and Time is fleeting, And our hearts, though stout and brave, Still, like muffled drums, are beating Funeral marches to the grave. In the world's broad field of battle, In the bivouac of Life, Be not like dumb, driven cattle! Be a hero in the strife! Trust no Future, howe'er pleasant! Let the dead Past bury its dead! Act, - act in the living Present! Heart within, and God o'erhead! Lives of great men all remind us We can make our lives sublime, And, departing, leave behind us Footprints on the sand of time; Footprints, that perhaps another, Sailing o'er life's solemn main, A forlorn and shipwrecked brother, Seeing, shall take heart again. Let us then be up and doing, With a heart for any fate; Still achieving, still pursuing, Learn to labor and to wait.
Peace,
Dan
Monday, October 22, 2007
Decision Time
We went to the surgeon last Wednesday, after an updated MRI on Monday. We stopped at the hospital to pick up the report before the appointment and of course read it in the car. It indicated that except for edema (swelling) there wasn't any evidence of a tumor.
We met with Dr. Compagnoni and she gave us the perspective on the MRI report. While it would seem to be good news that the tumor is undetectable, she still wants to proceed with a mastectomy, a complete removal of the breast. They will also remove some lymph glands, with a check by a pathologist during surgery to help make sure no more lymph glands than necessary are removed.
The next issue was about potential reconstruction. Would Deb want to have something implanted or not? The options are to use abdominal tissue or an implant of saline or silicone. Abdominal tissue is removed below the navel, which is the least likely alternative to cause issues later. There is a scar and the potential for the abdominal muscles to be sore for some time. The recovery time can extend to six or seven weeks.
Using a saline or silicone implant reduces the hospital stay, but at the time of surgery a expander is inserted with a pump. During a several month period the pump expands the skin over the chest wall so that when all treatment is finished, a permanent implant can be inserted.
http://www.breastcancer.org/tips/reconstruction/types/implants.jsp is the web site that discusses implants.
Deb is still doing homework on this, but leaning toward not having reconstructive surgery. She can have it in the future, of course, but would like to heal more quickly and her life style isn't going to be affected by her decision not to have an implant.
I know that Deb is starting to struggle more with the enormity of cancer, surgery to remove a breast, and the aftercare. There is also the reality of repeated checks and the potential for a recurrence.
If not for the kindness shown to us, and all the prayers from so many people, we would be lost. There has been a flood of information and events as this is national Breast Cancer Awareness Month. So many people with cancer, and so many family members and friends struggling with care and support for the victims.
Courage is resistance to fear, mastery of fear -- not absence of fear.
Mark Twain (1835-1910) U.S. humorist, writer, and lecturer.
So many have trod this path before us, without the advantage of the medical care we have now, so we will make our choices and leave it in God's hands.
Thanks to all for your caring. It is impossible to describe how your love and warmth makes it possible for us to endure, sometimes even with humor!
God Bless all of you,
Dan
Saturday, October 13, 2007
The Twerp is Dead
The end of chemotherapy. It began on May 3rd, and no one could have made me believe then how it would affect Deb over time. Everyone has side effects of course, but somehow, even though you know they will happen, and you read the list, my mind at least, could not process the information. Nor did I understand the loss of taste, the rash and the extra side effect like the pain in her fingers and toes. Deb does such a good job with this, never complaining and working most every day. She made cookies and took them in with her to show her appreciation to the great staff at Dr. Weyburn's clinic.
I spoke to a friend Wednesday and he related that his wife, a nurse, had the identical treatment and developed chronic congestive heart failure as a side effect from the chemo, so praise God, we seem to have dodged all that.
Next Wednesday we visit the doctor to determine the surgical schedule, decide on reconstructive surgery options and see how the new MRI looks. I plan to be off when she has surgery for a few days.
Today is Deb's thirty year high school reunion. Two other couples are going that we attend church with, so we will have some friends there. I'm looking forward to going, it should be a blast.
Oh yes, as all of you know, we have Strider, who seems to feel a responsibility to protect us from everyone and everything. But there was a dog who she grew to like. She would bark in that special way she has when Twerp would walk by with his master, Bob. Strider would rush out to greet both with no barks or growls but with her tail wagging at 100 miles and hour. Twerp was a long legged black dog who seemed to love everyone and every dog, very hard of hearing but always willing to have a treat. Bob's constant companion since his wife died five years ago, Twerp liked ice cream after dinner and a warm buttered English muffin for breakfast. Too old to chase rabbits and squirrels anymore, he delighted in resting with Bob on the bank in the front yard and watching the world go by. Twerp died three weeks ago, and Bob is doing his best to understand and deal with the loss of his best friend. Because as we all know, dogs supply unconditional love in this sometimes unloving world. Twerp was sixteen, old in dog years. Will Rogers said that he didn't know if dogs went to heaven, but when he died, he wanted to go where they go when they die.
Amen.